John Wilbanks spoke about Your health, your data
He argues for getting health data out into the public domain so that it can be used for research and for everyones benefit to enable better health.
1. Doppler shifts
There are apps where people can take pictures of food
People annote it with whether they think what they are eating is healthy or not
People think pizza is 2.5 X less healthy if someone else is eating instead of them personally eating it
Science services market place provides public source of information.
Health records are not a good metaphor
Medical record are like a giant earhorn (how they listened for planes coming over the english channel)
Radar disrupted the earhorn industry
2. Health is not like other data
Target - 16 year old data showed she was pregnant
Progressive - 4 behaviors risky driving patterns. Swerving, hard braking, driving midnight to 4am etc...
Put a monitor device and you do not do it then get 10-30% discount
We have a consumer genome
everyone anonymous for 15 minutes - clay shirky
get a usable copy of the info
Below is a chain of companies that he used to first gather his genome data and then to get it analysed and annotated. Snppedia and other analysis by researchers turned up more hypertension and other risk factors.
consent to research
Donate data to research- consent once
connect people with disease with researchers directly
honesty, reusability, consent
Integrate EHR with app gathered data
ONC people supportive
Pharma will be a leader (GHK leading)
HL7, Ontologies - interoperable health records
need super mappings
If you liked this article, please give it a quick review on ycombinator or StumbleUpon. Thanks